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Upcoming Races:  Zero Prostate Cancer - Sept 22

You, Making A Difference

Mary is participating in the New York Marathon on November 5.  She is racing for the National Organization for Rare Diseases ' (NORD)  Running for Rare team, with a goal of raising $3,000.  Your donation goes to their Undiagnosed Disease Fund which helps people who have exhausted other options.  Click here to make a donation .

Welcome to Running On Air.  There are many ways you can make a difference.  Follow us on social media for alerts when opportunities and events arise (like joining one of our virtual races) and for other information.


Right now you can also:

Running On Air was founded by Mary Rose Kitlowski.  Mary has a rare lung disease called Primary Ciliary Dyskinesia (PCD).  Mary enjoys running.  Because of her lung function  (about 40% of normal) she has to wear oxygen.

Our goal is to raise awareness, raise funds, and provide educational information about PCD, lung diseases in general, rare diseases and oxygen needs.  We also want to encourage those with disabilites to find safe ways to become and stay active.
We are currently a small organization.  Our dreams for the future are big.

Raise Awareness

Purchasing one of our many shirt and accessory designs helps raise awareness and the funds raised support our mission.  100% of funds raised for PCD shirts go to the PCD Foundation.

In The News

10/10/14 WMAR ABC 2 Baltimore, MD - see below
There's something about Mary - every breath she takes

Learn more about:

  1. 1
    Oxygen
    Learn what you need to know before going on oxygen to help make the best choices for you and your lifestyle.
  2. 2
    Lungs
    Overview of the lungs, how they work, and what pulmonary function tests mean.
  3. 3
    Rare Diseases
    There are over 7000 rare diseases in the United States.
  4. 4
    Lung Diseases
    1 in 7 adults have a lung disease. The #3 killer in the US is from lung disease (if you count all lung diseases together).
  5. 5
    Primary Ciliary Dyskinesia
    PCD is a rare disease, degenerative disease. There are less than 600 confirmed diagnosis in the US.
  6. 6
    Bronchiectasis
    Bronchiectasis occurs when the airways are damaged causing them to widen and lose their elasticity.